Loose Threads Quilters Guild
  • Meeting Schedule
  • Newsletters
    • 2022-2023 Newsletters
    • 2021-2022 Newsletters
    • 2020-2021 Newsletters
    • 2019-2020 Newsletters
    • 2018-2019 Newsletters
    • 2017-2018 Newsletters
    • 2016-2017 Newsletters
    • 2015-2016 Newsletters
    • 2014-2015 Newsletters
    • 2013-2014 Newsletters
    • 2012-2013 Newsletters
    • 2011-2012 Newsletters
  • Block of the Month
    • 2022-2023 BOM - Mystery Quilt
    • 2021-2022 BOM Mini Quilt a Thon
    • 2020-21 Pincushion of the Month
    • Block of the Month 2019-2020
    • Block of the Month 2018-2019
    • Block of the Month 2017-2018
    • Block of the Month 2016-2017
    • Block of the Month 2015-2016
    • Block of the Month 2013-2014
    • Mystery Block of the Month 2012
  • Field Trips - upcoming
  • Charity Projects
    • NICU Hearts & Cuddle Pads
    • Walker Bag
    • Fidget Quilts
    • Project Linus
    • ConKerr Cancer pillowcases
    • ICE (In Case of Emergency) Quilts
    • Quilt's for Kids
    • Southeastern Veteran's Center
  • Quilter's Tea
    • Quilter's TEA 2023
    • Quilter's Tea 2022
    • 2021 "Quilt Affair"
    • Quilter's Tea 2020
    • Quilter's Tea 2019
    • Quilter's Tea 2018
    • Quilter's Tea 2017
    • Quilter's Tea 2016
    • Quilter's Tea 2015
    • Quilter's Tea 2014
    • Quilter's Tea 2013
    • Quilter's Tea 2012
    • Tea Luncheon Recipes
  • Quilt Challenge
    • 2023 Quilt Challenge
    • 2020 Quilt Challenge
    • 2019 Quilt Challenge
    • 2018 Quilt Challenge
    • 2017 Quilt Challenge
    • 2016 Quilt Challenge
    • 2015 Quilt Challenge
    • 2014 Quilt Challenge
    • 2013 Quilt Challenge
    • 2012 Quilt Challenge
    • 2011 Quilt Challenge
  • Fabric Exchange
  • Quilt Shops & Museum List
  • Recipes from the Guild
  • Longarm Services
  • Members only
    • Forms
    • Patterns

​2016 Tea Invitation 


​
New this year is a raffle quilt with 90% of the proceeds going to the American Porphyria Foundation.  The chances are $2 for one or three for $5.  The raffle will take place at the Tea on March 12, 2016.  To purchase tickets, contact dokeefe19@hotmail.com.

The quilt is a lovely red and white queen size Double Irish chain, quilted by Cat's Eye Studios. See picture below.


Porphyria is a group of 7 genetic blood disorders where blood is correctly manufactured by the body only 50% of the time.  All of the porphyrias change the blood chemistry of the patient making all typical medications potentially deadly to the sufferer.   
They are only now discovering how to diagnosis and treat these disorders which are life changing and life threatening.  Most people have never heard of porphyria, including many doctors, so few donate funds to this non-profit organization dedicated to educating medical professionals and performing research.  
These disorders have been a bane to humanity for centuries.  The vampire myth was actually based on one type of porphyria that causes the person’s skin to bubble when exposed to UV light.    
Recent Porphyria News (Wed, Nov 18, 2015):  The American Porphyria Foundation just announced that they and their FDA Committee will be leading a FULL SPEED AHEAD charge to gain FDA accelerated approval of Afamelanotide/SCENESSE, the new treatment for erythropoietic protoporphyria (EPP), a rare disease which causes absolute intolerance of patients' skin to light.   NOTE: EPP is only one of the seven types but this is a start. This treatment is currently available in Europe.
 

American Porphyria Foundation  4900 Woodway Dr. Ste 780 Houston, TX 77024 www.porphyriafoundation.com ​
Picture